Non-invasive ventilation in motor neuron disease/amyotrophic lateral sclerosis: an Australasian perspective

Research output: Contribution to journalMeeting AbstractResearch

Abstract

Aim: To survey all practising respiratory physicians and neurologists within the Australasian region with a postal questionnaire, in order to gain an insight into their perceptions, practice patterns and knowledge regarding non-invasive ventilation (NIV) in motor neuron disease (MND). Methods: In total, 1635 questionnaire surveys were posted to respiratory physicians (835) identified through TSANZ in June 2014 and neurologists (800) identified through ANZAN in September 2014. The questionnaire collected information related to the frequency of NIV therapy use and gathered statistics to understand the preferences and views of treating specialists. All received responses (305) were de-identified and were analysed with descriptive statistics and independent sample t-test analysis. Results: Overall response rate was modest (19%) and the results interpretations were limited to this small cohort of specialists' responses. Almost 50% (94/199) of respiratory physicians and 30% (35/106) of neurologists who responded indicated that they do not see MND patients in their practice; as MND is a rare disease with a low incidence of 2.74 cases in 100,000 people. For the respondents who managed MND patients, the rate of NIV therapy use in MND patients by the respiratory physicians and neurologists was 75% and 29% respectively. Both respiratory physicians and neurologists relied on each other jointly in co-managing MND patients on NIV therapy. The three main barriers to NIV therapy were severity of bulbar impairment, cognitive impairment and social isolation. Conclusions: The Australasian rate of NIV therapy use in MND by respiratory physicians was high (75%), with eight out of ten MND patients being successfully established on NIV therapy.
Original languageEnglish
Pages (from-to)153
Number of pages1
JournalRespirology
Volume20
Issue numberS2
Publication statusPublished - Mar 2015
EventAnnual Scientific Meetings of The Australia and New Zealand Society of Respiratory Science and the Thoracic Society of Australia and New Zealand - Gold Coast, Queensland
Duration: 27 Mar 20151 Apr 2015

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