Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta

Brigitte Mueller, Raoul Engelbert, Frances Baratta-Ziska, Bart Bartels, Nicole Blanc, Evelise Brizola, Paolo Fraschini, Claire Hill, Caroline Marr, Lisa Mills, Kathleen Montpetit, Verity Pacey, Miguel Rodriguez Molina, Marleen Schuuring, Chantal Verhille, Olga De Vries, Eric Hiu Kwong Yeung, Oliver Semler

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Abstract

On the occasion of the 13th International Conference on Osteogenesis imperfecta in August 2017 an expert panel was convened to develop an international consensus paper regarding physical rehabilitation in children and adolescents with Osteogenesis imperfecta. The experts were chosen based on their clinical experience with children with osteogenesis imperfecta and were identified by sending out questionnaires to specialized centers and patient organizations in 26 different countries. The final expert-group included 16 representatives (12 physiotherapists, two occupational therapists and two medical doctors) from 14 countries. Within the framework of a collation of personal experiences and the results of a literature search, the participating physiotherapists, occupational therapists and medical doctors formulated 17 expert-statements on physical rehabilitation in patients aged 0- 18 years with osteogenesis imperfecta.

Original languageEnglish
Article number158
Pages (from-to)1-14
Number of pages14
JournalOrphanet Journal of Rare Diseases
Volume13
DOIs
Publication statusPublished - 10 Sep 2018

Keywords

  • Mobility
  • Occupational therapy
  • Osteogenesis imperfecta
  • Physiotherapy
  • Rehabilitation

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    Mueller, B., Engelbert, R., Baratta-Ziska, F., Bartels, B., Blanc, N., Brizola, E., Fraschini, P., Hill, C., Marr, C., Mills, L., Montpetit, K., Pacey, V., Molina, M. R., Schuuring, M., Verhille, C., De Vries, O., Yeung, E. H. K., & Semler, O. (2018). Consensus statement on physical rehabilitation in children and adolescents with osteogenesis imperfecta. Orphanet Journal of Rare Diseases, 13, 1-14. [158]. https://doi.org/10.1186/s13023-018-0905-4